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CLIENT SERVICES

Celebrating RiChARD lY

I want to talk of edinburgh. he liked looking for new challenges and was
about someone determined to complete those challenges no matter what.
who meant so it was heartbreaking that Richard was taken away from us
much to me and in late August of this year, but we are proud of everything
my family, my he has done. These were achievements in his life that he
older brother was also proud to have accomplished. But, on a personal
Richard Ly. level, the greatest achievement that Richard made was the
Richard was the lasting impression he left on the lives of the people that he
Richard on his Duke of Ed Adventurous Journey second eldest had met.
of four children After losing someone dear, you start to appreciate the
(three sisters), born on 27 September 1994. Overall, we people in your life more. You notice more clearly how
enjoyed our childhood together, playing games and making someone fits into your story. Richard was here as an
our own worlds of fun. it was unfortunate that by the age example for everyone to see that there is always another
of 13 Richard was diagnosed with Muscular Dystrophy. way. he achieved what he set for himself regardless of his
Richard sometimes questioned himself on why he was disability. What you can take away from this story i share
diagnosed with this disability, but he was always very with you is that you should not let your condition limit your
optimistic. he did not let his condition limit him, and he performance. There is always another way.
always looked for ways to achieve his goals. he continued Richard was a blessing to many people, an influence on his
his education after high school and into TAFE, where he first friends and overall a kind-hearted person. So, we celebrate
studied information Technology and then perused graphic his life and the milestones that he accomplished through
Design. he was highly involved with the local community, our own personal memories of him. he is gone, but will
where he volunteered in the nursery. Richard also did a never be forgotten.
lot of physiotherapy and hydrotherapy, since he knew that
they were helpful exercises for him to get stronger. one of Melissa Ly, Loving sister
Richard’s greatest achievements was completing the Duke

gReAT TURNoUT FoR oUR 2019

NEUROMUSCULAR INFORMATION

AND RESEARCH DAY

Thank you to everyone who attended our Joe, Carolyn and Chris, the Living
Neuromuscular Information and Research Day in the Life I Choose panel
August and for your encouraging feedback! The day
was a great success, with over 70 attendees enjoying • ‘Home Automation & Home Modifications –
an interactive information stall, great networking investigating options to increase independence’
and a jam-packed program full of engaging key note
speakers and panels. • ‘Planning for the future – experiences as a
grandparent’
if you couldn’t make it, but would like to catch up on
all the latest insights and research on neuromuscular • ‘Living the Life I Choose – a panel of people with
disorders, all of the talks are available on our YouTube lived experience of neuromuscular conditions’
channel, as well as the MDNSW website (here’s the
direct link: mdnsw.org.au/neuromuscular-seminar-
and-research-update-2019).
here’s a breakdown of the program: “Thank you MDNSW for making our journey easier”
• ‘Taking control of splicing: new therapies for “Informative and motivating”
neuromuscular disorders’ “[The Seminar] was wonderful, even better than
• ‘Update on Facioscapulohumeral Muscular last year”
Dystrophy & Myotonic Muscular Dystrophy’
“Lots of useful tips on lots of subjects”
• ‘Understanding the Disability Royal Commission’
“Worthwhile and good to network. I got a lot of
• ‘What has been achieved through MDNSW Bequest new contacts”
program’

6 .............Talking Point Summer 2019